Writing the Book – Sharing the Journey

release day finally arrived for Dancing around the Chaos!

After thinking about this book for years, it’s finally a reality!  It’s hard to believe there is an actual book I can hold.  I hope Mom and Dad would be proud of me.  Even after all these years, I want to please them.  I do know they would like hearing about the people who read their story and what a difference it made in their Alz Journey or even what a difference it made in their commitment to those they love.

In the early days of the disease, when I heard stories of others in later stages, I actually thought…”Well, I know that will never happen.”  Little did I know what the future held; I was very naïve.   Many times along the way, I would remember something a friend had shared with me two or three years prior, and reality would settle in.  We were there; those things were happening.  It was hard, no doubt, but at least I knew others had been down this road.  That gave me comfort.

As we journeyed through Alzheimer’s with Mom and Dad, I regularly took notes, sent emails to our kids, took pictures…that sort of thing.  Somewhere along the way, I decided that one day I could write a book with all the notes I was taking.  I had become passionate about sharing the story and encouraging others.  I wanted to share our journey with people who needed to hear about it.


My reasons for writing the book, telling what really happened are basically:

  1. To help others beginning the journey – to share information that may be helpful to them, even if it is hard to tell…and hard to hear.
  2. To make it clear to those who don’t understand what Alz is…it is a cruel disease of the brain affecting 5.7 million Americans.  According to the Alzheimer’s Association, that number could rise to 14 million by 2050.  It is much more than just forgetting someone’s name; it is the 6th leading cause of death in the U.S.
  3. To share a sweet story of two people who loved each other to the end. Their journey made it possible for others to witness a true, one-of-a kind love story and raised the bar for many.
Sharing the JOURNEY

I am nervous  now that people are actually reading the words I wrote.  Maybe this is normal for a first-time author; I’m not sure.  There are many very personal things that I did not share, and yet, there are many that I did.  It’s not an easy story to tell, but the truth is – Alzheimer’s is not easy.  If I didn’t tell the real story, even the parts that make us uncomfortable, then I’m not sure any of the three reasons I wrote the book would be accomplished.

The unexpected gift that came from writing the book was that it was a healing experience for me.  It has been one of the hardest things I’ve ever done, but healing, none-the-less.  For that reason, I would suggest to others…write.  Keep a journal.  Take pictures.  There will be difficult parts of your story, but there will be treasures too.  You may miss those them if you aren’t keeping track along the way.  Sometimes we don’t recognize the treasures until we look back on our story.

Writing is healing
Write it down, take pictures, capture memories

“No one ever told me that grief felt so like fear.”  C.S. Lewis

Dancing Around the Chaos


NOTE:  As I started writing this post, I realized everything I said in my April 10 post is what I really wanted to say again.  After cutting and pasting, re-writing this and that, I finally decided…I just need to send that post again.  So if much of this sounds familiar, it’s because a lot of it came from that post 6 weeks ago.  I think these words are appropriate again with the release of the book.

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3 Replies to “Writing the Book – Sharing the Journey”

  1. Thank you for sharing your story. Your book was such a beautiful tribute to your parents and there love for one another and your love for them.

    Praying for God’s healing for you.

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