Dancing around the Chaos is now available for pre-sale on Amazon!
This book is simply the true story of what happened on the Alz journey with Mom and Dad.
Why did I write the book?
My reasons for writing the book, telling the true story…what really happened are basically:
- To help others beginning the journey – to share information that may be helpful to them, even if it is hard to tell…and hard to hear.
- To make it clear to those who don’t understand what Alz is…it is a cruel disease of the brain affecting 5.7 million Americans. According to the Alzheimer’s Association, that number could rise to 14 million by 2050. It is much more than just forgetting someone’s name; it is the 6th leading cause of death in the U.S.
- To share a sweet story of two people who loved each other to the end. Their journey made it possible for others to witness a true, one-of-a kind love story and raised the bar for many.
In the early days of the disease, when I heard stories of others in later stages, I actually thought…Well, I know that will never happen to Mom or (later) Dad. Little did I know what the future held; I was very naïve. Many times along the way, I would remember something a friend had shared with me two or three years prior, and reality would settle in. We were there; those things were happening. It was hard, no doubt, but at least I knew others had been down this road. I was navigating a trip that others had already traveled. I was glad I had had at least a glimpse of the map.
Sharing the Map
As we journeyed through Alzheimer’s with Mom and Dad, I regularly took notes, sent emails to our kids, took pictures…that sort of thing. Somewhere along the way, I decided that one day I could write a book with all the notes I was taking. I had become passionate about sharing the story and encouraging others. I wanted to pass along another piece of the map.
As I’m writing this post, the book is finally on Amazon for the pre-sale period, and I feel nervous. Maybe this is normal for a first-time author; I’m not sure. There are many very personal things that I did not share, and yet, there are many that I did, some that may make people feel uncomfortable. It’s not an easy story to tell, but the truth is – Alzheimer’s is not easy. If I didn’t tell the real story, then I’m not sure any of the three reasons I wrote the book would be accomplished.
The unexpected gift that came from writing the book was that it was a healing experience for me. It has been one of the hardest things I’ve ever done, but healing, none-the-less. For that reason, I would suggest to others…write. Keep a journal. Take pictures. There will be difficult parts of your story, but there will be treasures too. You may miss them if you aren’t keeping track along the way; sometimes we don’t recognize the treasures until we look back on our story. And, it may be helpful to others for you to, one day, add another piece to the map.
“Even when walking through the dark valley of death I will not be afraid, for you are close beside me, guarding, guiding all the way.”
#Alzheimers #Dementia #Caregiving
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